“Exhausting and an honor”: Caring for Elliott and leading the change across the DEEs

Gabrielle Conecker is the mother of 13-year-old Elliott, who lives with SCN8A, a developmental and epileptic encephalopathy (DEE). From day one of Elliott’s life, with seizures and thousands of hours spent in the hospital, the family’s reality has been relentless – and so has Gabi’s drive to change it.

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European Commission grants orphan designation for Lundbeck’s investigational anti-ACTH monoclonal antibody asedebart for Cushing's syndrome of endogenous origin
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