Patient advocacy in migraine and neurology

The American Migraine Foundation (AMF) mobilizes the community for patient support and advocacy and supports impactful research that translates into advances for people with migraine and other disabling diseases that cause severe head pain. 

AMF developed "Migraine Journey" on their website, which offers personalized resources and recommendations for people impacted by migraine. 

The Association of Migraine Disorders (AMD) strives to expand the understanding of migraine and its true scope by supporting research, education, and awareness.

AMD aims to spread awareness and education to reduce stigma and show support for those living with migraine disease through its "Shades for Migraine" campaign.

CHAMP (Coalition for Headache and Migraine Patients) improves the lives of people with migraine, cluster, and other headache diseases by aligning coalition members and empowering patient voices. 

Each June, CHAMP spotlights Migraine and Headache Awareness Month, which helps raise awareness, address stigma and empower the migraine community through vital resources and initiatives.

Miles for Migraine hosts walk/run/relax events, education events, support groups, and volunteer groups. The organization supports headache fellowship programs to increase research and foster advocacy for adults and children.

Miles for Migraine's ACT Now advocacy training program helps empower members of the migraine community to advocate for migraine-related issues. 

The National Headache Foundation (NHF) is the oldest and largest foundation for people living with migraine disease and headache disorders. NHF's focus is education, advocacy, research, and furthering awareness of headache and migraine as legitimate neurobiological diseases.

NHF offers a variety of educational proramming and resources, including NHF InSights and Action4Access.

The World Health Education Foundation (WHEF) serves those who live with chronic illness and their caregivers. The organization specializes in migraine initiatives that help provide patients with affordable access to care, better education, and advocacy.

WHEF created a series of "Me vs Migraine" videos, highlighting stories of real people impacted by migraine, including how a single mom fights chronic migraine.

The organization's Migraine World Summit also offers patients and caregivers the chance to enhance their understanding of migraine and headache disorders by accessing insights from world-leading migraine experts, doctors, and specialists worldwide. 

The mission of the Headache & Migraine Policy Forum is to advance public policies and practices that promote accelerated innovation and improved access to treatments for persons living with headache disorders and migraine disease.

The Headache and Migraine Policy Forum raises awareness on critical topics related to headache disorders and migraine through educational infographics. 

They've also compiled national insurance claims data to help demonstrate unmet needs for people living with migraine and headache disorders and illuminate how step therapy may prevent access to proper migraine care. 

The Alliance for Headache Disorders Advocacy (AHDA), founded in 2008, is an umbrella organization uniting headache advocates nationwide. Their ongoing mission is to make life better for the millions of Americans living with headache disorders in the US. Members include organizations, medical providers, scientists, caregivers, and people living with headache disorders. 

AHDA and the Headache Alliance host a bi-annual Headache on the Hill event, which promotes advocacy in action for critical healthcare reform.

Hope in Pain provides patient- and caregiver-oriented advocacy support and education services focusing on migraine disease, other headache disorders, and chronic pain. 

Migraine Meanderings offers educational resources and support to people who live with migraine, bringing hope and inspiration. They believe that the patient voice matters, and actively advocate for patient engagement in raising awareness, clinical trials, and partnering with our doctors. 

Migraine Meanderings has developed several resources to empower individuals to become involved in their migraine management and help to have discussions with their doctors about the appropriate management of migraine, including a Migraine Toolbox.

U.S. Pain Foundation is dedicated to serving those who live with conditions that cause chronic pain, as well as their caregivers and care providers.

The US Pain Foundation's "Living Well With Migraine" booklet is a comprehensive guide offering management support and resources for people living with migraine.

The mission of the Global Healthy Living Foundation (GHLF) is to improve the quality of life for people with chronic illnesses (such as arthritis, osteoporosis, migraine, psoriasis, asthma, alopecia, inflammatory bowel disease, and cardiovascular disease) by advocating for improved access to health care at the community, state, and federal levels, and amplifying education and awareness efforts within its social media framework.

GHLF has created resources that provide valuable insights and help empower individuals with the knowledge and support they need to manage migraine, including the "Talking Head Pain" podcast, a conversation highlighting the burden and impact of migraine, and the "My Migraine, My Goals" webinar focusing on person-centric communications in migraine.