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With more than 30 million Americans – or one person in 10 nationwide – affected by a rare disease,1 Lundbeck recognizes the tremendous need for scientific research and support for affected individuals and families. Currently there are nearly 7,000 rare diseases, but fewer than 500 FDA-approved treatments.2
Raise Your Hand is Lundbeck’s web-based awareness initiative that, since 2010, has generated support for people with rare diseases during the month of February. The campaign was born of a partnership with the National Organization for Rare Disorders (NORD), the U.S. sponsor of Rare Disease Day, which is held annually on the last day of February.
The campaign invites individuals to visit www.rarediseaseday.us and click on the “Raise Your Hand” icon during the month of February. Each unique click triggers Lundbeck to make a $1 donation to NORD’s research grant fund (up to a maximum donation of $10,000).
In 2016, Lundbeck’s donation to NORD’s research fund supported grants related to Alveolar Capillary Dysplasia (ACD), Malonic Aciduria, and Stiff-Person Syndrome (SPS), a rare, acquired neurological disorder3 believed to affect fewer than one in 1 million people.4
Lundbeck employees support Rare Disease Day 2011 by raising their hands in the office.
- Rare Disease Day US. http://rarediseaseday.us/ Last accessed 1/12/17.
- Rare Disease Day Fact Sheet. Rare Disease Day US. http://rarediseaseday.us/wp-content/uploads/2015/01/NRD-1008-FactSheet_5.pdf Last accessed 1/12/17.
- Stiff-person syndrome. National Organization of Rare Disorders. https://rarediseases.org/rare-diseases/stiff-person-syndrome/ Last accessed 1/12/17.
- Stiff-person syndrome. Johns Hopkins Medicine - Neurology http://www.hopkinsmedicine.org/neurology_neurosurgery/centers_clinics/neuroimmunology_and_neurological_infections/conditions/stiff_person_syndrome.html Last accessed 1/12/17.